Posted by Tim Richter on December 10, 2003 at 07:48:24:
In Reply to: If I had a child with perthes posted by Tim on December 03, 2003 at 07:03:40:
I was diagnosed with the disease at age 6 (after weeks of trips to doctors and no one had a clue- as this was 1963- Dr.'s at UW- Madison finally figured it out- xrays every few weeks, the crutches, etc... My treatment was very similar to our host (Tim). I survived the crusthes and a stronger person becasue of the experience! I am tracking with some other folks in their 20's that are experiencing hip pain when exercising, they had surgery though...Please feel free to email me with any questions- Happy Holidays!
Tim Richter, trichter@nortelnetworks.com
: I have seen a few posts lately asking what to do if a child has LP so I thought I would post some of my knowledge.
: I remember when I had LP, the X-rays were obvious that the femoral head was indeed soft, the top looked somewhat blurry. If indeed the head is softening, you will also see as flattening occurs (which is bad). I see so many times now the "Wait and see" method used, which I guess is ok as long as you don't see as I have described. I would think if you do see this, immediate non-weight bearing would be a great idea. My doctor was clear as he showed me my x-rays from the beginning as well as through my progression. I had x-rays every 2 weeks for years it seems... and I could also tell as it was getting better. In my case it was somewhat severe so I was put on crutches and a Perthes Sling, eliminating all weight bearing for nearly 4 years. I know that sounds pretty bad when you compare it to surgery and back on your feet in a few months, but having lived through it myself, it really wasn't that bad... and the end result I feel is better than average. I do know that if diagnosis is in a later stages of LP and damage has already occurred, there is not much alternative to surgery. If it is early, however, don't let the fear of your child on crutches scare you into making the wrong (in my humble opinion) decision. Kids can overcome so much, as parents we need to look out for the long term effects on our children, not so much as what is best for us and our immediate needs.
: I'm hoping this post will lead to others posting on their own story, helping the "new" people around that really need the answers.
: Tim